It’s All In Your Head -- Around the World in 80 Lyme Patient Stories
Author: PJ Langhoff
PJ Langhoff, one can say, knows the big names in Lyme disease country. Dr. Burrascano, one of the biggest of the biggest names, writes a powerful foreword for this collection. He admits reading this book “brings forth many emotions.” Emotions such as “empathy, sadness, anger, disgust, urgency.” He is not alone. He is also not alone when he admits that he’s “the father of a Lyme patient, the brother of a Lyme patient, and the son of a Lyme patient. In fact, I have been a Lyme patient too.”
There are millions who can relate to this physician’s relationships to Lyme disease. Dr. “B,” as he is fondly called, recalls how he started his march on the Lyme disease path. He began his medical career in 1981 and low and behold, he had patients with weird symptoms, “the worst of which were the confusion, speech errors, and memory problems.”
He says that it wasn’t until he went to a seminar where “the brilliant Alan MacDonald, the pathologist at my local hospital” explained a “new illness called Lyme.”This lead to “another brilliant and very kind colleague, Dr. Bernie Berger, who really worked our the early knowledge of the EM rash (he is a Dermatologist).” Dr. Burrascano believes his patients and realizes that they are “not crazy” and “that it’s not all in their head.” He offers advice, too – very nice and right on the money!
We all know someone with Lyme, have read about Lyme or will be the next one to get Lyme disease.In this book, we are quick to learn who the players are – Mr. Rhipicephalus sanguineus; Ms. Ixodes pacificus; and the Ixodes scapularis family. We are also privy to a brief but informative history of Lyme disease, the symptoms of Lyme disease, and the stages of Lyme disease. What I found most interesting in the beginning of the book are the various statistics, including the “misdiagnosis frequencies.”Better yet, Ms. Langhoff touches on an extremely controversial part of Lyme disease, often missed in other books about this subject – that of biowarfare, antibiotics and testing.
The “humor” chapter would be funny – if it weren’t true. Instead of embracing the Lyme disease symptom checklist and investigating the patient’s complaints further, it seems some “doctors” would rather it be something easy – like the “chiropractor” who reviewed a patient’s symptoms and examined “his patient and concludes that the patient has ‘muscle tension syndrome’.”Instead of Lyme disease, patients are misdiagnosed – pre-menstrual for a woman in her 40’s; antidepressants for a patient who never complained of “agoraphobia”; or, the Infectious Disease physician who confesses that he doesn’t believe in Lyme disease – the patient promptly tells the doctor that Lyme disease believes in her (as she just as promptly walks out of the office). The responses of some physicians are amazing – amazing in the fact that they say these things and still think of themselves as caring doctors (remember your oath Mr. M.D.?). It’s time the physician actually listens to their patients – it not all in their heads! In fact Lyme disease is in your head – your heart, your muscles, your tissues, your eyes, and any other part of the human anatomy. But your patients are not insane, malingering, or hypochondriacs. The are innocently ill with an infection.
The personal stories of Lyme diseased patients in this book cover 23 states in the U.S., “5 Canadian provinces/territories, and 11 overseas countries.”Langhoff suggests that if you can read the stories with no emotion, you have become numb and you should go back and reread the stories with a more open heart.If you’re disbelieving or numb, this reviewer suggests you may want to take a walk on the wild side of life to prepare you better to feel the Lyme disease stories here – a walk in the woods or a tumble with your unprotected canine after it has been in the grass outside your back door might just be your ticket to understanding – firsthand. If you’re not that brave or there is one shred of doubt about the existence of Lyme disease, you may want the safer way to seeing the big picture – read articles by true LLMDs (Lyme Literate Medical Doctors), sign up for a Lyme disease conference, or read the series, It’s All In Your Head, by PJ Langhoff. She has painstakingly collected stories, vital information, and presented all in a format that makes sense (it should make sense, the disease and patients are real!). What these patients have endured, I would wish on no one.
You, dear researchers and disbelieving physicians, know that chronic Lyme disease exists and the co-infections are real. The suffering is endless only because you have chosen to hold hands with the likes of each other rather than offering dignity in treatment by following the humanitarian guidelines (ILADS).
The above review was contributed by: Sue Vogan: Sue is a Writer & Author of NCO-No Compassion Observed: To read more of Sue's reviews Click Here
Click images below to purchase this book or to read more from this author (Note: May not work with all browsers)
It’s All In Your Head – Patient Stories From the Front Lines
Author: PJ LanghoffISBN: 978-0-09654580-4-7 PJ Langhoff starts pulling at our heartstrings with the dedication page – “Two Lyme patients who recently took their own lives … one due to the intractable nature of this insidious illness, and the other specifically lost hope when his beloved physician was forced to close hi practice due to a decision by a state medical board which doesn’t understand the complexity of Lyme disease and because the doctor treated outside the “standard of care,”...
Hotel Stories: Legendary Hideaways Of The World
Author: Francisca Matteoli Publisher: Assouline ISBN: 2843233429The following review was contributed by: NORM GOLDMAN: Editor of Bookpleasures &CLICK TO VIEW
The Killer Book of True Crime: Incredible Stories, Facts and Trivia from the World of Murder to Mayhem
You Can Purchase From Amazon The Killer Book of True Crime: Incredible Stories, Facts and Trivia from the World of Murder to Mayhem By Clicking Here Authors: Tom Philbin and Michael PhilbinPublishers: SOURCEBOOKS INCISBN: 13:978-1-4022-0829-4 10: 1-4022-0829-4The introduction to Tom and Michael Philbin’s The Killer Book of True Crime: Incredible Stories, Facts and Trivia from the World of Murder to Mayhem states that the book’s objective is to serve up a potpourri of delectable...
Beating Lyme, The Disease, The Diagnosis, Controversy And Treatment For Lyme Disease
Click Here To Purchase From Amazon Beating Lyme, The Disease, The Diagnosis, Controversy And Treatment For Lyme DiseaseAuthors: Constance Bean with Lesley Ann Fein, M.D.ISBN: 9780814409442 “If your disease is not cured in a few weeks, you may be told, mistakenly, that you have chronic fatigue syndrome, that your excruciating pain is due to fibromyalgia, to an unknown virus, new allergies, or other chronic conditions that we don’t yet know about.” Does this sound familiar? If you have Lyme...
Confessions of a Crack Head (an anonymous memoir)
Click Here To Purchase Confessions of a Crack Head Author Zach SamuelsPublisher: WheatmarkISBN: 978-1-60494-091-6 Meet Zach Samuels - a recovering drug addict. Like many addicts, he has probably tried everything from dope to crack cocaine and all that falls in between. This is his story.Looking
Mayday A Physician as Patient
Author: Allan Lohaus, M.D.ISBN: 978-0-9755922-9-8 The following review was contributed by: S.V. SWAMY: CLICK TO VIEW S.V. Swamy's ReviewsAbout the Book (From the inner flap) - Mayday! is a medical odyssey journalrevealing the thought, feelings, humor and spirituality of an American physicianduring months of hopitalization. Rising on swells of optimism and tugged down bypain, infections, operations and adverse outcomes, he drifts through waters toodeep to stand in and too dark for him...
Mayday! : A Physician as Patient
Author: Dr. Allan LohuasISBN: 0975592297 The following review was contributed by: Ernest Dempsey, pen name of Karim Khan: To read more of Karim's Review CLICK HERE ‘Stand tall-think tall’ was the advice of Allan Lohaus’s physical therapist, as Dr. Lohuas was wanting in spirit while having just caught the road to convalescence. Earlier came in Dr. Lohuas’s life course a painful period of intestinal surgeries and dependency on medical aid. As he came out of the nearly helpless anguish,...
Mayday! A Physician As Patient
Author: Allan Lohaus, M.D.ISBN: 0-9755922-9-7The following review was contributed by: Sue Vogan: To read more of Sue's reviews Click HereWhen I chose this book to review, I just assumed that it would be another physician whining about not getting enough attention or complaining about the five-minute wait for an x-ray. I fully expected the physician's dry version of ho